WASHINGTON — It was hard enough that Savi Abdallah-Sinha was only 2 years old when he began undergoing chemotherapy treatment to rid his body of leukemia.
What made his situation even more difficult, his parents say, was knowing that the little boy was so young he lacked the words to communicate the many varieties of acute pain he was experiencing. Each time a new drug was introduced or a round of treatment completed, the boy’s inner world remained largely mysterious to the adults caring for him.
“He couldn’t even say, ‘Why am I taking this medication?’ ” his father, Rachid Abdallah, said from a family room inside Children’s National Health System in Washington, D.C., recalling the first months after his son’s chemotherapy began. “At the same time, we didn’t have the words to give him answers or explain to him what was making him sick.”
Nearly a year ago — as Savi’s own understanding of his illness was just beginning to come into focus — the Washington, D.C., family received a new tool to help them communicate through the fog of cancer: a quacking robotic duck resembling a soft stuffed animal.